This week is National Osteogenesis Imperfecta (OI) Awareness Week! We are happy to partner with the Osteogenesis Imperfecta Foundation, and we are so proud of their commitment to improving the lives of 25,000-50,000 people affected by what is also known as “the brittle bone disease.”
What is Osteogenesis Imperfecta?
People with Osteogenesis Imperfecta (OI) or Brittle Bone Disease experience frequent broken bones from infancy through puberty. OI is a complicated, variable and rare disorder. Its major feature is a fragile skeleton, but many other body systems are also affected. OI is caused by a mutation in a gene that affects bone formation, bone strength and the structure of other tissues. It is a lifelong disorder which affects around 25,000 to 50,000 people in the U.S. With good medical management and supportive care, the majority of people who have OI will lead healthy, productive lives and can expect an average life span.
Why We Love the OI Foundation
The Osteogenesis Imperfecta Foundation supports people with OI in their journey to live a healthy and full life by funding innovative research, raising awareness, educating those in the medical field about the disease, and offering community support system. Since 1970, the OI Foundation has doubled funding for research every 5 years. Their programs make an incredible difference in the lives of thousands of individuals affected by this disease.
Learn More and Get Involved!
Medical Research Charities proudly supports the OI Foundation as one of our 25 superstar member charities dedicated to finding cures for life’s most dreaded diseases. Visit their website to more about how “brittle bone” disease affects thousands of Americans, and how the OI Foundation is making a difference. Support their incredible work by donating to advance research.