February 28th was Rare Disease Day, and the theme was research. Research brings hope to people living with rare diseases, and your support can make a difference. Our partners at the Alpha-1 Foundation, the United Leukodystrophy Foundation and the ATS Foundation (American Thoracic Society) raise awareness every day and fund critical research to find treatments and cures.
Here are some reasons why this day is important.
“Do you know someone living with a rare disease? Seeing as approximately 30 million Americans have one of the 7,000 diseases considered “rare,” odds are, you do.
With so many individuals and families affected by rare diseases, you might imagine an abundance of medical resources and support communities exist, but it’s quite the opposite. The National Organization for Rare Disorders (NORD) reports that for most rare medical conditions, no cures and few proven treatments are available, and many people affected by rare diseases have revealed they feel alone and struggle to explain to others what they’re going through.
Click here to read what they had to say on themighty.com.